It’s been quiet but I’m still here
Not just have I been quiet here on the blog but also on Instagram. In fact, it’s been the longest time I’ve been quiet since I started on Instagram. Unfortunately, it’s because of a very challenging situation.
Back in July, we thought we had lost one of our twin boys - Símon. Out of the blue, he had his first seizure - and since then, the seizures continued, ranging from weeks to hours apart. That led to 5 months in and out of hospitals - going through countless scans, inspections and tests. It’s been a rollercoaster of emotional ups and downs - ranging from hope that the situation had improved and that our son was safe - to complete loss of hope and fearing the worst. It’s a battle with an invisible enemy – one that has proven immensely difficult to diagnose and even name. At this stage, we have ruled out most serious things, leading to the current diagnosis that it’s some sort of epilepsy. Our hope is that he will grow out of it but nothing is certain.
Never have I felt so helpless, defeated and humbled by life. At the same time, trying to stay hopeful - hoping to see the light at the end of this long tunnel.
Making the most of it
Considering the circumstances with our sons health issues, my adventures in Iceland look a bit different these days. Instead of doing trips into the Icelandic wilderness, observing nature from afar will suffice for the time being. Currently, I’m dedicating most of my energy to family and Símon in particular. Kasia (@lifehobbyist) is now back at work, so I’m embracing my own version of stay-at-home dad. To give you some context; I’m not really able to refrain from adventures and shenanigans. So instead, I’m finding joy in small adventures such as dancing at home with Símon, DIY Christmas decorations or stroller-nap-time-trips finding various exciting things along the way. (Like half a broken tree and some cones which I’m sure I’ll find a purpose for 😝)
It’s been a while since I’ve posted and it almost feels like a lifetime ago since I first started talking about the battle we’re going through. Luckily things are slowly stabilising and we’re step-by-step learning how to live with some degree of uncertainty and long-term health issues. But also, things are looking better than they did a couple of months ago, I’ll tell you more about that some other time. In the meantime, I hope everyone’s doing great and slowly finding the holiday spirit. All the best my friends ♥️
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